Ben had a pretty ugly night as far as seizures go. I'm not sure if they continued all night, but they were bad at bedtime and bad again this morning.  I didn't see any during the day time today, so I am hoping things will begin to taper off now. 

Speaking of tapering, Ben at three full Keto meals today, and kept down two of them. At dinner time he was actively hungry, and laid on the floor in the kitchen while I prepared dinner. He was awake more, and in general seems more alert and like his normal self. He even sat up for a while and did some puzzles with Meg and I. He's going to get better after all-phew!

I spoke with the Keto dietitian today. She really wanted me to start pushing more food at Ben, and she also suspects that the gagging during meds and some meals is and avoidance mechanism rather than actual gagging. Hmmmm. On reflection Dave and I think she's right.  We hadn't caught on to that one.  She also thinks the increase in seizures could be due to the lowered ratio we did  a couple of weeks ago. It's really hard to say. We changed Ben's ratio on a Monday, he was sick by the following Thursday.  So it's possible. But as always, we have other factors clouding the issue. Dave and I really want to give this ratio a chance, but we really don't want Ben to keep on having seizures. Ben has an appointment on Wednesday with both the dietitian and the neurologist and I plan to talk about these issues. I also plan to talk about medication issues. Interestingly, Dr. Mark did not get any memos from Children's about the Dilantin overdose or the Leviratacetam issue.

I went and saw Dr. Mark today myself.  He put together a plan for me of vitamins/supplements that short circuit the adrenaline process. I am feeling much better already-yay GABA!  I also made an appointment for Dave and I to talk with a pastor from our church to give us some spiritual guidance.  Pastor Mark is a good and kind man with whom we already have a relationship, and I look forward to hearing what he has to say.

I want to thank all of you for the messages of support and encouragement I received all day. It is hard, as a mommy, to watch your baby suffer. When they are little, you really can make everything all right. For Ben that is no longer my job, and the realization that I can't fix this is hitting me hard.  This too shall pass, and with friends like you, it will pass all the more quickly.

Teena